Consent Information: Public Input into Pandemic Planning

Consent Information

Study Title

Public Input into Pandemic Planning

Principle Investigator

Kim McGrail
Associate Professor, School of Population and Public Health
Scientific Director, Population Data BC
Email: kim.mcgrail@ubc.ca
Phone: (778) 998-3821

Information about the Study

As we begin to flatten the curve in BC, we can move slowly from crisis to management. Government is considering loosening social measures. There are many trade-offs among public health, broader health, social and economic consequences to consider. These are informed by predictive models and other analyses and input from decision-makers. Engaging the public in meaningful ways is both the right thing to do and an opportunity for further community and civic development. We are facilitating a series of online public deliberations to enable people to give their input regarding upcoming changes to the government’s COVID-19 response.

Data from the Study

The data will be notes taken by rapporteurs and the collective recommendations and reasonings behind those as created by the participants during their meetings. A full report will be created from this data and will be posted on the website and made available to government and public health leaders and policy makers. All research data will be retained for a minimum of 5 years after the report is provided to policy makers. All research data will be encrypted and password-protected on the Population Data BC’s computer network. Population Data BC is a secure UBC facility. The PI (Kim McGrail) will be responsible for the data during the entire study period, including the retention period.

Privacy and Confidentiality

You have the right to not answer questions discussed in the deliberation and have the right to leave the deliberation at any point. We encourage all participants to refrain from disclosing the contents of the deliberation outside of the focus groups; however, we cannot control what other participants do with the information discussed. We are conducting these deliberations via the Zoom online platform. Please be aware that zoom stores your name and information regarding your use on their site on their servers, which are located outside of Canada. If you would feel more comfortable, please use a nickname when signing onto a zoom meeting and/or consider turning off your video (if applicable) to protect your identity.

Concerns or Complaints about the Study

If you have any concerns or complaints about your rights as a research participant and/or your experiences while participating in this study, contact the Research Participant Complaint Line in the UBC Office of Research Ethics at 604-822-8598 or if long distance e-mail RSIL@ors.ubc.ca or call toll free 1-877-822-8598.